Adenomyosis I am not my disease

Humble Soul, Personal

I am not my disease. Adenomyosis stage 1 I was told. Back in 2018, I wanted to die. Getting up during my period felt like I was being stabbed. Every doctor I went to either thought I was crazy and went as far as trying to admit me to the psych ward. Imagine, me, 23 years old, working 70 hours a week, and being told I was crazy. Before that day, I had no idea what Adenomyosis was. I thought my long periods (my longest being 31 days), pain during sex (TMI), and extreme nausea and bloating was some karma. I blamed myself.

Maybe I partied excessively , my nutrition wasn’t the best, or even perhaps my past life karma followed me into this one. It took until recently for me to be in a better place mentally. I had to find myself again in a sense. I was worried about my marriage because so many things kept happening. I wasn’t the fun-loving person anymore. I couldn’t eat. I couldn’t sleep, I even had to quit my job because I couldn’t do it. I thought my life was over, and I was ready to die. Most doctors, I would say, eight out of ten know about this disease. Every answer I heard was birth control, deal with it with pain meds, or surgery. For those who don’t know about this disease, let me tell you: Adenomyosis is a condition of the uterus (womb). The cells that usually form a lining on the inside of the uterus, also grow in the muscle wall of the uterus.

 The term adenomyosis comes from the words:

  • adeno – gland
    • myo – muscle and
    • osis – condition

Similar to endometriosis but very different. With endometriosis, cells similar to those that line the uterus are found in other parts of the body, such as the fallopian tubes, the ovaries or the tissue lining the pelvis (the peritoneum). Some theories many doctors have. 

  • The lining cells invade into the muscle layer as a result of surgery
    • Bordering tissue was deposited into the uterine muscle early in fetal life, before birth
    • Inflammation of the lining after childbirth causes cells to pass into the weakened muscle layer

Adenomyosis is mainly only seen in women in their reproductive years because its growth requires oestrogen. But it has been found in some young women. To learn about it more check out; A lot more research still needs to be done. After menopause, Adenomyosis usually goes away because of the lack of oestrogen.

For those of you who don’t know what oestrogen is, I got you covered. Oestrogen is a female sex hormone with many roles in the body, from controlling puberty to strengthening bones. Having too much or too little oestrogen can cause a range of different medical conditions.

Some of the symptoms include abnormal periods, painful periods, pain during sex, tiredness, anemia, and dizziness. The list is much longer, but to name a few. It’s most likely to occur in the back wall of the uterus but can occur anywhere in the muscle layer. If Adenomyosis is concentrated in one area, it can lead to a mass called an adenomyoma. To be diagnosed is hard. You first have to get your doctor to believe you. I was personally given a transvaginal ultrasound (the ultrasound probe is placed in the vagina). You could also get an MRI, or for those who have already had a hysterectomy, a pathology test may be given. 

The so-called treatments are mostly birth controls. For example, progestogen may be given, which comes in the form of an IUD (Mirena). A GnRH agonists (an artificial hormone used to prevent natural ovulation)could be used or, of course, a Hysterectomy. Now please remember I am not a doctor, and a lot of this is my experience. I started birth control at the age of 13 and got off in December 2019. It controlled my acne, my cramps, but not really, and the length of my period. I got off because I wanted to get my body ready for a baby. After getting off it, my body was, of course, all over the place. My acne came, and I was so embarrassed. It was crazy to me because the doctor had nothing for me but more drugs. I had to research to save my own life. I am going to break this post up, meaning we still have a lot more to discuss. Subscribe, so you never miss a thing. If you have Adenomyosis, Endometriosis, PCOS, or any other chronic illness, please know you are never alone. If you ever need to talk, please send us a message. I will be writing more about to heal your body, and I hope you join me on this journey.


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